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Whedonesque - a community weblog about Joss Whedon
"Also, I can kill you with my brain."
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December 08 2009

Bid for a Captain Mal Reynold's holster prop replica. This special one of a kind auction is being organised by the California Brownooats and all proceeds will go to The ALS Association. ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord, patients in the later stages of the disease may become totally paralyzed.

My father has motor neuropathy, which is very similar to Lou Gehrig's Disease. He had to retire three years ago; he just turned 60 this October.

His left leg is so badly atrophied that it's a complete size smaller than his right; he has trouble walking (especially on uneven surfaces), standing or sitting for long periods (Sometimes his legs "quit" if he's been sitting too long and he collapses when he stands) and is in a constant state of pain.

It's very depressing for my parents and me - Dad was always active (He was a tile setter, and later superintendent for the company, all my life) and now many things he loved to do (hunting, snowmobiling, cooking maple syrup) are too painful for him.

Diseases such as ALS tend to be overlooked by the general public because things like cancer get more media attention, which is a shame. Props to the CA Browncoats for using the fandom to bring more awareness to this debilitating disease.
Huge thanks to the California Browncoats for supporting ALS research and shining a light on this under-recognised disease.

My dad died from Motor Neurone Disease (MND, aka ALS) last year (aged 69) and it's a really awful disease. His mind was sharp but his body failed him. He lost the ability to swallow first, then walk, then move - all within a few years of diagnosis. The thing that was hardest for him was losing the ability to speak. He was always a great conversationalist and I really miss our chats over cups of tea. Dad and I used to watch Whedon shows together, and while he wasn't a huge fan, he appreciated the good storytelling and all of the funny.

There's currently no cure for MND, and little to no treatment options. So thank you, CABC for helping in the fight.

[ edited by JenskiJen on 2009-12-09 00:20 ]
My Dad passed on from ALS back in 2002 after an 8 year battle. He was 49. He had so many skills and talents that were washed away as his body gave up on him, one piece at a time. It is truly a horrific disease, and I applaud any effort that brings awareness and helps the cause.

Much thanks to those involved.

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